The Tumor

If you haven’t followed Our Story, you might want to start at the beginning.

I panicked when I walked into the house. I couldn’t tell who was hurt. I checked our toddler first and once I realized he was okay I tried to figure out what was wrong with Sailor.

He kept mumbling something and finally I realized he wanted me to check his blood pressure. I did and thought I made a mistake. It was 220/115. I took it again and it was the same. Sailor said he thought he was having a stroke. First a heart attack now a stroke… I couldn’t believe this was happening.

My mom arrived and I rushed Sailor to the ER. They took us right back (note: crazy high blood pressure will also get you right in to the ER) and Sailor was freaking out. He was sure he was dying. His cries of pain were so loud that the nurse asked him to hold it down because there were children around.

They admitted him to the hospital for tests and once again could not find anything wrong with him.

After he was discharged I didn’t feel comfortable leaving him alone with the kids. There was something wrong with him, but no one could figure out what it was.

A few weeks later his doctor at the VA Hospital tested him for a rare tumor. The test came back positive.

We were unsure what this diagnosis would mean for our family. What we knew was that Sailor had a rare tumor and that most people die from the tumor before it is found. We were fortunate.

They did an ultrasound to pinpoint the exact location of the tumor. During the ultrasound the tech asked Sailor if he had ever had cancer. He said no, he then asked if he had any previous abdominal surgeries, once again no.

Unbeknownst to Sailor he only had one kidney!

Thankfully this would have no effect on the tumor, but it was definitely unexpected.

The only cure was to remove the tumor, but the surgery was extremely risky. One mistake in the operating room could kill Sailor.

The VA Hospital wouldn’t handle such a complex case and he was assigned a surgeon at the Naval Hospital in Jacksonville. He was given medicine to reduce his blood pressure for the surgery. A spike in blood pressure during the surgery could result in a stroke or even death. To complicate things the tumor needed to be separated from his body completely before they could touch the tumor – if not he could die.

The blood pressure medicine had some serious side effects and Sailor had to withdraw from nursing school. He was unable to drive and even walking became difficult.

He had to take the medicine for four weeks before they could operate. During that time Sailor grew very depressed, he thought was going to die during the surgery. The night before the surgery we drove up to Jacksonville and stopped for dinner at a Mexican restaurant. Sailor said he wanted Mexican food for his “last meal.”

That evening Sailor ate like I had never seen him eat before. He was so stuffed that he couldn’t even get out of the booth. I anxiously sat in the booth waiting for Sailor to digest his last meal, I’m sure all my fidgeting finally convinced him he could make it to the car. We left and I dropped him off at the hospital and checked into a hotel to spend the night.

The next morning I hurried with Sailor’s parents to the hospital to see him before the surgery. We walked into the hospital room to find a half-dead looking Sailor lying in the bed.

We rushed over to him, thinking they had already given him a sedative before the surgery.

We were wrong.

Apparently the night before Sailor had been given two bottles of the stuff that cleans you out prior to surgery drink. The drink combined with enough Mexican food to feed a Mariachi band meant Sailor had spent the entire night in the bathroom. It got so bad that he finally just slept on the toilet.

He wasn’t drugged, he was exhausted.

I figured I would be sad before saying goodbye to him, but the thought of him sitting on the toilet all night with his IV pole made me giggle so I left feeling more happy than worried.

I don’t remember how long the surgery lasted but I do remember receiving occasional updates from the nurse. Things were going well but they ended up having to do a more invasive procedure than they initially expected. Instead of a few small incisions Sailor would have a fifteen inch incision across his stomach and recovery would be long and painful.

Finally the surgery was over and they allowed me into the recovery room to see him. He didn’t look good, but he was alive. I said a few things and then had to leave and wait for him to be transferred to the ICU.

When we were finally allowed to see Sailor in the ICU I was shocked. He was hooked up to so many tubes and wires you could hardly tell it was him. He wasn’t in a regular bed, he was in a chair that inflated and deflated with his movement.

Sailor hated the chair. Every chance he could he would try to move his body away from the chair, but it would inflate and press against him. He was frustrated and in pain.

It was hard to see Sailor in the ICU but it was better than the alternative.

After a few days Sailor was moved out of the ICU and into a regular room. Sailor was anxious to get home because the hospital was two hours away and visits were difficult. Finally after ten days he was released.

Our daughter ended up needing surgery on the same day Sailor was released from the hospital so his parents brought him home since I was at a different hospital. After I brought our daughter home I set up two hospital stations in the living room. Our daughter got the love seat and Sailor got the couch.

That evening my parents came over to visit. Sailor laid on one couch and we sat around talking. My father, who had major surgery a few years earlier, started cracking hospital jokes.

They were funny, really funny. I was glad to be laughing after so many months of stress. Sailor was laughing too… but he didn’t want to laugh. He asked my dad to stop the jokes, but my dad couldn’t, he was on a roll.

I finally told my dad that if he didn’t stop telling jokes he would be the one taking Sailor to the ER when he busted a stitch, or two.

My parents went home.

An hour later my father was on his way to the ER with Sailor.